Monday, August 24, 2009

First Follow Up Appointment

Hi Friends,

Yesterday was Dad's first follow up appointment with the surgeon. He got his stitches out of the area where they drilled. Now he just has his scar, which I might add, is healing well. His hair is actually growing some, so it covers some of it up. The scar is still a 7 inch horse shoe shape. It's definitely taking some getting used to for him, but at least it's just cosmetic.

The appointment went well. They told him the headaches, low energy, fatigue and poor/blurry eye sight were all normal after such a major surgery. He also had a CAT Scan which they said looked normal. He has to go for a follow up MRI in 3-6 months. Thank you for the continued prayers. He is still getting used to being on new medications, and learning how to live with this "new" normal. We are so thankful that he is looking and feeling great, and has gotten his color back. He still has just a little bit of his black eye left, which has taken a long time to heal.

That is all for now. Thank you again for your continuted support everyone has given my family!

-Tiffany

Wednesday, August 19, 2009

Wonderful Wednesday

Hi Everyone,

Your favorite blogger is back!!! ;-) I know my Mom updated last night, and I am sorry we have not been better about updating daily. Like my Mom said, my Dad is doing better. Each day is getting better. He still has some stitches left and his black eye hasn't gone away, but hopefully it will soon. Last night after we ate dinner I took my Dad on a walk up and down the street. It wasn't far, but he really looks forward to the evening when it's not so hot so he can get out of the house if only for a few minutes. It wore him out, but he is pushing himself to walk every day. He really is doing great. Still has the headaches, but they are on and off. The area where they drilled during the surgery is the most painful for him. I can't even imagine what that would be like! He had a headache very early this morning, but he is taking extra strength tylenol to help regulate them. It's alot better now that he isn't taking the heavy duty pain meds...it makes him foggy and drowsy. I'm glad that tylenol is helping him. He says it's the worst in the morning because he has been laying down all night. Once he gets up and around, it seems to get better.

Like my Mom said, my Grandma left yesterday to go back home to N.M. She has been here almost a month. It was a blessing to have her here, but I know she was ready to get back home. We already miss her! Now that Jazz is back at school, and my mom and I start school on Monday, things seem to be back to normal. I am so blessed to have such a wonderful job that I really enjoy and is stress free. I can't believe I start Seminary next week! I am really excited. I have a friend that is letting me borrow two of her textbooks..so I only have buy one! I am blessed to have such great friends! :)

Anyway, thank you to everyone who has been following our blog and keeping up with my Dad. Sometimes if he feels up to it, he is able to read some of the older posts, and we also read him entries in the guestbook from the hospital. He has been very touched to see what everyone who came to visit wrote..It's really cool to see that. He hardly remembers any of the time he spent in the ICU. Like I have said before, he loves the cards that he has been recieving--it's brightens his day every day to know people are thinking and praying for him. Since he is home all day, it's really the highlight of his day to go outside and check the mail. :) (Except when he gets bills..lol)It's hard for him to be taking it easy and resting all day, it really is. He wants to be up working in the garage, and back at the church! I have the upmost confidence that that will all happen very soon.

I hope everyone reading this today has a blessed day. We love you all!!

Tiffany

Tuesday, August 18, 2009

Slowly but Surely...

I haven't updated much this week - we are in the slow curve of recovery, and I really don't want to bore you with statements like, "Stewart walked from one room to the other today." That just isn't very exciting! ;)

However, we are slowly returning to normal life. Jasmine went back to school yesterday, Stewart's mom returned to New Mexico this morning after staying 3 and a half weeks, and I went to my own first day of teacher inservice at school. Also, Stew stayed alone today for the first time for a couple of hours, and did just great. He is up most of the day now which is tremendous progress.

By far the biggest challenge is his desire to return to work, and the headaches. The headaches are fewer and farther between, and for the most part, not as intense. He talks about returning to the things he loves doing often, and we are steadily putting the events of this past 5 weeks behind us.

I know we all need to return to normal life and I am quite anxious for a routine, school starting next Monday, and Stewart returning to his own work before long. In fact, I can't wait to be bored! I will welcome normal, normal, normal. And yet I often think of the many friends in my life that weren't able to return to "normal" after their loved one became ill or hurt. Stewart's cousin lost his life in June in a car accident, leaving behind a family. My own mother died of cancer. Life doesn't come with guarantees, and I am deeply aware of this fact.

So, for now, we appreciate deeply the gift of restoration that is ours.

Enjoy the little things!
Denise

Thursday, August 13, 2009

Trust and Healing

I received a wedding invitation today from a high school friend that was actually in our wedding many moons ago...it really took me back to our oh-so-80's wedding, replete with white patten leather shoes and white tuxes. John Travolta would have been proud.

This comes on the same day that Stewart is beginning to come to terms with what he has been through over the course of just 4 short weeks...it seems we have travelled as many emotional miles in 30 days as our entire 25 years of marriage.

As I was helping him with the bedtime routine tonight, he thanked me, (for about the millionth time :) for helping him through this process. That's when it hit me -that marriage, above all else, should be a place of healing our wounds. And have we had a few over the years. I often think the greatest trial and error of any relationship is learning to trust. So, whether it's the challenges of career, family, or even a realllllly big cut in your head, ;) trust opens the doorway for healing. I am honored that he can sleep peacefully knowing that I will be there in the watches of the night. This of course means I will be so tired tomorrow I may kick the dog, but it is an honor to have such a wonderful husband to take care of.

Stew got all of his hair cut off today, boot camp style, and he looks exactly like his 1st grade picture. LOVE it. He has regained almost all of his eyesight...aren't you amazed? So am I. He got upset with Jasmine over spending what he deemed too much money at Target. I danced a jig in the kitchen. At least I know we are gaining some of our old life back if those two are arguing about money??! SO normal. And, he had the mother of all headaches, a little scary, but called the Dr. and learned that, duh, your head might hurt after brain surgery. I amaze myself sometimes over what I worry about.

I went ahead and put the dog up for the night, so no worries!

Love,
Denise

Wednesday, August 12, 2009

Life isn't a 30 minute segment.

Hi Friends,

We are sorry we haven't updated this week. Yesterday I was watching one of those medical shows on the discovery health channel. In thirty minutes, you see someone go from a diagnosis, usually a devastating one, and by the end of the thirty minutes it's showing them perfectly healthy again and playing outside with their family. Well, I am coming to realize that life doesn't actually work that way. It got me thinking..until I actually experienced a serious medical problem with my own family member, I never honestly understood how other people felt. It is sooo differen't actually living the day to day life and seeing my Dad go through this. Yes the surgery is over, and it was not cancer. PRAISE GOD for that. But seeing the pain, the meds, keeping everything regulated, the sleepless nights...they just don't show you that on tv! I have a differen't compassion for those who have to deal with an illness, loss, or major trauma in their family. It's just something I cannot really even explain. Especially when it happens so fast-- I think it's just starting to actually set in my own mind that my Dad just had brain surgery.

It has also been brought to my attention the significance of marriage vows. As many of you know, my parents celebrated their 25th anniversary in a hospital room in the ICU. When you commit to "love each other through sickness and health" on your wedding day, I bet alot of people don't actually think about taking care of their spouse after brain surgery. I have to give it to my mom, I really do. We have all helped as much as we can, but it's my mom that sleeps on the couch every night outside my their bedroom, getting up every few hours to help him. She is also the one who keeps track of when he needs his meds, tracking when and what he has drank during the day, driving him to the doctor's appointments, keeping my dad's spirits up, praying...all while trying to keep it together for my sister and I. I guess "real life" is a little differen't. I guess it's just reality. My mom has really shown me what true commitment is through this. I really hope that I can one day be the same time of Godly example to my own family!

So I think I should actually write a little update on the actual patient, right ? :) Due to his sodium levels yesterday, he was suffering from insatiable thirst again, which was alot like the first day or two after his surgery. It all has to do with the pituatary gland and if it's working or not. Right now, it is not really working on it's own so he is taking meds to regulate everything. He was just so thirsty, nothing could quench his thirst. He was able to start back on his meds for that last night, so by bedtime he was feeling much better. He is still having pain in his back, some pressure in his head and headaches, but I think that is part of the healing process. We are pretty much in daily contact with his doctors every day still. Tommorow will be two weeks since the surgery. He actually told my Grandma last night if he feels better today, he wants to take her to a furniture store tommorow and help him pick out things for her kitchen. He then proceeded to tell us he would be flying up to see her in N.M. sometime soon to help her finish decorating her kitchen! Honestly, we just all laughed. We really needed to hear that from him! It may not sound funny, but just to hear my Dad talking about getting out and trying to re-design her kitchen was refreshing. At least we know everything in that brain of his is still working the same! Much to his chagrin, I do NOT think he will be furniture shopping tommorow..he needs to master that "walking" thing first. He will get there though :)

Again, our family is so blessed by all of you. The thoughtful cards, encouragement, calls and visits during the hospital stay is something we can never repay. We have also been so blessed by the meals that have been brought. I know it takes so much stress off of my Mom and Grandma, and it is so nice to sit down and eat as a family in the evenings. My Dad even has been able to come to the table these past few nights and eat with us. We honestly REALLY treasure that time together. Every day when we check the mail we get so excited to give my Dad his cards to open! That's the highlight of his day!

I will end this extremely long post. Love to all of our family and friends, and many, MANY thanks for the outpouring of love. It honestly would have been so much harder without the emotional support.

Warmly,
Tiffany

Sunday, August 9, 2009

Home At Last!

Stew came home yesterday afternoon and it has been round the clock care to help him. His back and legs are still in excruciating pain from laying in a hospital bed for 12 days. Our family chiropractor is helping to get him back in order. It is slow going, but he sees a ray of improvement, even in his sight today.

I wish he was up for visitors, and I so appreciate everyone's understanding. Brain surgery is just so involved, and his pituitary gland is damaged, meaning lots of regulating trial and error in the days/weeks ahead with meds. However, I firmly believe this is going to happen, and have no doubt that we have been incredibly blessed on this journey so far. He has made such a big step forward since coming home - just walking inside his own house and realizing that the surgery is behind him has been an incredible emotional boost. AND being out of that hospital bed! Stew is not a person that sets around, ever. The last 3 days in the hospital were especially tough.

We are concerned about his sodium level - if it gets too low, he will go back to the hospital, but he is tolerating it at the present, and will have a blood test tomorrow to make sure he is ok. He is a tough guy, and isn't taking this "laying down." I can't keep him down for more than an hour or two, which is great.

We are so blessed to have his mom here for week 3 (already!) and I couldn't do this without her wonderful and constant help. My girls are doing great, trying to get their lives back on track with school starting soon and helping in every way possible. Thank you for all you continue to do to help - it has been a blessing I won't every forget.

Have a great Sunday and thank you for all of your prayers for us!
Denise

Friday, August 7, 2009

Home Sweet Home...attempt # 2!

Hi Friends,

Just a quick update for today. We thought my Dad would be coming home, but things didn't quite work out that way. He still had a little more recovering to do today. We got up early to make sure the house was clean, and were getting things ready when we got the news that it may be one more day. We are shooting for tommorow afternoon.

Today was the first day since he has been in the hospital that my mom was the only one at the hospital. It was nice to have rest, but I know my mom needs it too. Please pray that she will able to get rest and be restored before my Dad's arrival back at home.

Blessings,
Tiffany :)

Thursday, August 6, 2009

Home Sweet Home <3

Good Evening Everyone!

We found out today that my Dad is coming home tommorow! God is good. We are so happy that we are going to have him back home. It has been such an adjustment not seeing him sitting in his chair in the mornings with his coffee, teaching piano lessons, and painting furniture in the evenings. I know it will be a while before he is back to his normal self, but coming home is going to be such a blessing. He hasn't even been outside since he was admitted into the hospital ten days ago. That's a long time...especially for him!

He is getting his staples out tomorrow. He is still having a significant amount of pain in his legs and back. His headaches are feeling better. Please continue to pray for his pain. We want to make sure we are doing everything we can do make sure his adjustment back home goes smoothly.

The cards, gift cards, flowers, visits, prayers, meals (and ok...desserts too! :) and support have meant more to us than we can ever express through words. Not only to my Dad, but also my Mom, sister and I. We feel so loved and are so blessed that we have not had to walk this road alone for one minute.

Blessings,
Tiffany

Wednesday, August 5, 2009

No More ICU!

Today Stewart was moved from the Neuro ICU to a private room. It has been somewhat of an adjustment, but it is progress. It is definitely a change from having a nurse in and out of your room at all times. He is trying very hard to push himself to sit up and do very light walking like the doctors have advised.When I left the hospital this evening he was pretty much cord and tube free and able to wear regular pajamas tonight. He is excited about that!

He is having a lot of back and leg pain so please be in prayer for that. It's mostly just from being in a bed for several days, but he feels better when he is able to stand up. He walked a little more today, but is still in alot of pain. We are hoping he will get to come home soon, and that the staples from the incision will be removed.

We all know this is going to be a journey, and we are taking it a day at a time. :)

Tiffany

Tuesday, August 4, 2009

Happy 25th Anniversary, Dad and Mom!

We just wanted to tell our parents HAPPY SILVER ANNIVERSARY!!! Granted, these aren't ideal condition for such a special day, but Jasmine and I ordered my parents a smaller version of a wedding anniversary cake for the them to enjoy at the hospital. ( Thank you, Sherry, for that!) He has not been allowed to have any visitors today except for my Mom. I saw him for about 5 minutes this morning and that was all they would allow. Anyway, more to update later.

Mom and Dad, WE LOVE YOU!!! Thank you for being such wonderful parents to us!

Tiff and Jazz

Monday, August 3, 2009

Accepting a "New Normal'

Today we met with the Dr. and learned that the issues that brought us to the point of this surgery can be controlled with meds. Out of respect for his privacy I will allow Stewart to share what he wants on that topic. But, it was good news, and my mind is greatly relieved. I see Light at the end of this tunnel, and He has indeed been very good to us. In fact, He has always been very good to us.

Stew walked for the first time today - just a few steps - and commented at how exhausting it was. Headaches are a daily thing, but again, grateful for the pain meds that regulate and control them.

He was also very sober today. I can see that he wants to do much more than he is able, and that is hard to see. But wow! We have experienced a huge journey in such a short amount of time. There is no "microwave fast" recovery for brain surgery. I am grateful for those few steps, and that he will be out of ICU soon as all continues to go well.

'We give thanks to you, O God, we give thanks, for your Name is near; men tell of your wonderful deeds." Psalms 75:1

How grateful I am for the wonderful things God does every day - every hour - for Stew. The girls and I are doing well, getting plenty of rest, and trying to be as normal as possible. :)

Have a great evening,
Denise

Sunday, August 2, 2009

A Blessed Day

And finally, a calm day...

It is amazing how quickly our prayers are being answered. Stew called me early this morning to tell me that his sight in the right eye is better today. This is precisely what I was so concerned about yesterday. Also, there are some other issues with the pituitary gland that I also asked you to pray about yesterday. I was able to (finally) speak with the Dr. today about this, and he greatly put my mind at ease. (Note to self: stay away from Google...too much info. that really just scares me. I have got to develop a little more patience!)

Stew had a mammoth headache today. He didn't have as good a day as yesterday, but we were happy to know that Smokey the Bear was in his room. :) Oh, those pain meds. Today makes 6 days in ICU.

Saw the incision today for the first time. Sobering. And very, very large. Surgery is just so life-changing...but still so grateful for how much better he is going to be when he gets through this.

Thank you for all of the visits today...how sweet you all are, and how much you love my family...I am so touched. His siblings went home this morning, and we are so blessed to have such a great family who loves their brother and son so much.

Keep praying. Stewart's greatest desire is to serve God with all of his heart and strength!

Blessings,
Denise

Saturday, August 1, 2009

And Now, We Walk...

from the pit to the mountain top, now to the trail...and we will learn to walk.

Stew had a vision test today and he has a fairly large area out of the right eye that he can't see anything yet. This was disheartening to me, as was the entire morning. After so much turmoil, shock and trying to adjust to the moment-by-moment changes of these past 2-3 weeks, I realized today that now I must learn to just walk through this recovery. There are still some things that scare me. And, some things that thrill me. I still hate hospitals, and I am still a little grumpy that we aren't leaving for our trip tomorrow. Some things don't change. :) Although I did briefly wonder if I could roll his bed to the beach and just try to go anyway...didn't get far with that thought, people would stare. Just kidding. (Can't wait till Stew reads this blog in a few days...I am in so much trouble.)

Speaking of the vacation thing, he was on a funny med this morning that made him see palm trees and kiki our dog all in the same scene. I had to laugh out loud. If he gets to take this vacation in his head, at least he has to take that dog...if you only knew how irrated he gets with her! I call that God's great sense of humor...

I am quite weary, and hope to get some rest. I kind of all hit me at the same time yesterday and today.

Please keep Stewart before the Lord in prayer. For his vision to be completely restored, and for the function of the pituitary gland to be completely restored. Pray for the swelling to go down and all to be well. I know you are praying, and I so appreciate it.

Much Love,
Denise